Friday, October 23, 2015

Pain Chronicles: A Relatively New Wrinkle

It seems like the day after my 8/19/15 appointment with my endocrinologist I've had this weirdness develop. It's a new issue related to an old issue if that makes sense. I have had a dull-to-agonizing throbbing pain and spasm in about 3-4 muscle groups from my neck/shoulder, elbow, forearm, and wrist on my right side. Chiropractic adjustments and deep tissue massages have not been able to unlock this pain mystery, though my chiropractor has been doing trigger point ultrasound therapy and that has helped minimize the pain temporarily.

While away on vacation at the end of August the pain amped up considerably, to the point where I called my chiropractor, worried that something was seriously wrong. Chiropractor arranged for an MRI to be done the evening I returned from my trip, and I scheduled an appointment with my physiatrist. 

Unfortunately, the MRI machine went offline the evening of my scheduled appointment, so my appointment was jockeyed to the next day and the only available appointment was scheduled two hours after my scheduled appointment with my pain doctor. Beggars can't be choosers, I had to accept this.

Pain doctor told me to bear with it an additional two weeks, and if it did not self-resolve by then, for me to come back in for an EMG so we could figure out, specifically, which nerve was involved, and then I'd move forward towards a discussion on how to address the situation.

I gave it two weeks, and procrastinated scheduling the EMG, as I felt the tiniest bit better. By three weeks, I thought I had turned a corner and was on the road to resolution. 

At current writing, about two weeks ago, I attempted to hang curtain hardware. Due to some peskiness with the drywall anchors I was using, it took an unusual amount of time to do a relatively simple task. Literally: Three hours. Granted, I took breaks, but even so it was approximately three hours with my arms above my head. As I was attempting to do this relatively simple task, a task I've done hundreds of times before in my life, I could feel something in me change. At first I thought it was just my mood being altered; however, I feel that the physical was affecting the mental, and I was more aware of being in a foul mood before I realized I was in crisis.

My spasms were back with a vengeance. My upper EMG was scheduled on 10/19/15, and to everyone's surprise (mine, my chiropractor, my physiatrist), my pain is not nerve related. All nerve activity was normal. So this leaves muscular or skeletal pain. Physiatrist sent me home with some samples of Flector patches (a transdermal NSAID) and said for me to call in a few days and let him know if they were helping.

To be honest, I don't know if the patches alone are helping or if it's a combination of the ultrasound therapy I do at night PLUS the patches, but I felt like there was some change, even if it were a small change.

So I called the doctor to have an Rx phoned in to the pharmacy, and if he could also call in an Rx for a muscle relaxant that would be very helpful. 

10/21/15 I had an appointment with my chiropractor (a standing appointment, not an on demand OMG I am in pain appointment), and I gave him the quick and dirty of what the physiatrist had to say about it not being nerve related. 

Trying to do a differential on my situation is interesting and challenging as I am not exhibiting any signs of auto immune related pain issues such as RA, PA, Lupus, so that leaves non-auto immune muscular-skeleton related issues (whatever THOSE might be--I'm still reading up on this).

Last night, I picked up my prescriptions, and took my first dose of Flexeril. After dinner, I did my usual ultrasound therapy and was able to drop off to sleep. I woke up this morning feeling ever-so-slightly "refreshed." I took a hot shower, put a Flector patch on, packed a Flexeril in my pill caddy for the day (Rx is written 2 daily as needed), and I am hoping for the best.

In the meantime, I am not doing any tasks that require my arms to be above my head, nor am I doing anything which requires my elbow to be bent for protracted periods of time.

I'm speculating that my situation might be  several separate issues flaring up in tandem: perhaps shoulder bursitis, tendonitis, and perhaps carpal tunnel (even though my right hand is my non-dominant hand, when I crochet, this is the hand that throws the yarn over my hook). My first impulse was to think it was possibly Double Crush Syndrome, however, from a neurological viewpoint, it doesn't look to be the case.

Note to self: First full day of both, Flector and Flexeril. Reassess situation in one week.

Wednesday, September 09, 2015

On An Upnote

So Saturday I head to my PCP, ISO muscle relaxers to help with this unrelenting shoulder-elbow agony. Somewhat reluctantly he writes the Rx for skellaxin.

Interestingly enough, there I was, full in the throes of two weeks (perhaps more, at that time) of this new, throbby-sobby pain, only to be surprised that my BP reading that morning was 114/72. Best numbers ever!

Protip: If You Work At a Diagnostic Center or Doctor's Office, Take Heed



You might be a moron if:
I schedule both, an abdominal AND a transvaginal ultrasound, and you only manage to schedule the abdominal, which results in me having to get up an hour earlier and make yet another "enjoyable" visit to your facility. Granted the first time I rushed into the facility only to realize I forgot my Rx at home, and you were totally unwilling to assist me (by way of having my husband scan it--yes he was home--and email it to you--and I could have either brought the actual hard copy Rx in later that day OR you could have called my doctor's office and get them to fax the Rx), thus creating a scenario where I have to return to your facility for the abdominal, to realize you ONLY scheduled the abdominal and not both.  So. Okay. The first one? That's on me. I forgot my Rx, but what the fuck? Due to your ineptitude, I now have to fuck up THREE mornings instead of just two. Yes, Hartsdale Imaging, I'm calling you out.

You might be a moron if:
My doctor faxes a Rx for an MRI of a cervical spine, to happen the very evening when I return from vacation out of state--only to rush home to messages, first calling to confirm the appointment, then calling an hour later to reschedule the appointment because the machine is offline.  And of course the appointment is two hours AFTER my scheduled appointment with my physiatrist, of whom I NEEDED THE IMAGES for a proper diagnosis.  So, I arrive at the imaging center the next day, on time, to be asked for my Rx, when my doctor faxed it in FOUR DAYS PRIOR.  Then you call my doc, he tells you to do the MRI and he’ll fax it the next business day (he already faxed it, yet, inexplicably you couldn’t find it). The MRI was supposed to be of cervical spine, yet the CD of the images says “shoulder.” (Images did turn out to be of the cervical spine--so that disaster averted--however, HELLO, how about properly labeling the CD?)  The best of the best? I go to my doctor's office last night, in hopes of relief and hoping to find out what's been causing me severe, acute pain for three weeks--only to find out that you never forwarded the radiology report to my doctor. Yes, Upright Imaging, Yonkers, I'm calling you out. 

You might be a moron if:
At yet another facility entirely (name withheld, as the appointment is still pending, and I bet dollars to doughnuts it will be rescheduled YET AGAIN), my fine needle biopsy was scheduled for 9/25, only to be rescheduled to 9/23 (since they only do FNA on Weds). And 24 hours later, it was rescheduled to 9/30. Oh it also doesn't help matters that your phone demeanor (such as it is), is lacking.

Three separate diagnostic centers or medical offices, three separate fuck ups, with three separate issues still of undetermined  diagnoses due to you just not giving a fuck. Who has time for this shit?

Friday, August 07, 2015

Syndrome & Medical Condition List

Itemized list of medical conditions, syndromes and complaints from head to toe, with my chronic pain issues highlighted in red:

Dry scalp (scale, at times similar to mild plaque psoriasis)
Migraines (mostly menses)
Clinical depression/anxiety 
Sleep disturbance
Herniation at C4/C5 (+1 more)
Retinal nerve druzen
Myopic, astigmatism in both eyes
Deviated septum
Approx 7 nodules in thyroid
Mild-to-moderate Carpal Tunnel Syndrome, (L) hand
Intermittent cystic acne under chin due to elevated androstanedione
Asymptomatic, idiopathic granuloma in left lung
Hypertension
Idiopathic, non-problematic palpitations (Possible panic attacks)
Hypercortisolemia
Unrelsolved, idiopathic elevated DHEA
Approx 4 cysts in kidneys
Intermittent/transient proteinuria
Borderline gout
Osteo-arthritis
Past history of fatty liver syndrome
Syndrome X
PCOS
Adenomyosis
Past history of fibroids
Squamous cell atypia + 1 recurrence prior to laser surgery
Herniation at L5/S1 (+1 more)
Spondylolisthesis I of low spine
Trochanteric bursitis, (R) hip
Compromised ACL, both knees

Note to Self

Endocrinologist appt on 8/19

Concerns/issues to discuss:
  1. Screening for DVT; ask for a d-dimer test. Check! Done! Rx for test written!
  2. Do I exhibit signs for Lipedema? (Mother has lymphedema; prior to that exhibited signs of lipedema--currently handicapped and housebound due to complications from both) Negative so far!
  3. How different is DIC vs Factor Five Leiden Mutation? (I tested + for FVLM; brother, however had DIC, and exhibits signs of lipedema). Quit worrying, you can only have one or the other!
  4. Saliva adrenal profiles (re: DHEA, cortisol)? 24 Hour urine collect is much more effective for diagnostics.
  5. Ehlers-Danlos Syndrome? Negative.
  6. Is it meritable to do a follow up ultrasound of the thyroid? Yes. Scheduled for 9/23.
  7. Should I consider pro-actively going for lymphatic drainage massage? No.
  8. Follow up trans-vag sono scheduled for 8/27.

Updated Supplement List



Approximately  8 a.m., taken with a hot cup of coffee:
Supplement
Issue for which it’s being taken
2 Gummy VitaFusion Prenatal Multivitamins

2 Gummy VitaFusion Sugar Free Fiber Chews
Colon health; Impactions
Omega-3 1400 mg, 1x  (ratio: 647 mg of EPA and 243 mg of DHA) 
Inflammation; heart health; anti-oxidant/anti-inflammatory
Colace 200 mg (1x)
Impactions
Alpha Lipoic Acid 250 mg, 1x (unless proteinuria issue resurfaces)
Kidney health/proteinuria; Insulin resistance; anti-oxidant/anti-inflammatory
Milk Thistle 300 mg, 1x
Insulin resistance; fatty liver syndrome; anti-oxidant/anti-inflammatory
CoQ10 50 mg, 1x
Heart & skin health; anti-oxidant/anti-inflammatory
Grape Seed Extract, 100 mg, 1x
Heart health; anti-oxidant/anti-inflammatory
Relora, 300 mg, 1x (Magnolia officinalis bark & phellodendron amurense bark)
Elevated cortisol; Craving control; Improved sleep
400 mg Magnesium (oxide), 1x daily (sometimes boost to 2x during menses)
Colon health; impactions; cramps; Improved sleep
400 mg Calcium Citrate
Post-op RnY compliance
B12 (sublingual spray), 2500-5000 mcg
Post-op RnY compliance
Right before leaving the house:
Aldactazide 25 mg.

 Approximately 10:30 a.m.:
Supplement
Issue for which it’s being taken
Cherry Rich brand Cherry Extract, 500 mg
(Borderline) Gout;  Osteo-arthritis; joint pain;
anti-oxidant/anti-inflammatory
Biotin, 10,000 mcg
PCOS related hair thinning
D3, 2000 IU
Post-op RnY compliance
400 mg Calcium Citrate
Post-op RnY compliance

12 Noon (taken with a 6 oz V8):
Supplement
Issue for which it’s being taken
VitaFusion Vitamin C, 240 mg
Facilitate iron absorption; anti-oxidant/anti-inflammatory
Feosol Iron 325 (1 tablet)
Post-op RnY compliance

2 p.m. (ingested at same time as my bone broth):
Supplement
Issue for which it’s being taken
Vitafusion CholestorWell (400 mg plant sterols)
Heart health; cholesterol; anti-oxidant/anti-inflammatory
Vitamin B1, 100 mg, 1x (which I make sure not to take at same time as coffee)
Adenomyosis pain; Improved sense of well-being; Improved sleep
Vitamin B2, 120 mg, 1x
Migraine abatement; Improved sense of well-being
Vitamin B6, 100 mg, 1x
Kidney health/minimizing oxylative & oxidative damage; Improved sense of well-being
Joint Support Complex (Ratio: Glucosamine HCl 1.5 gm, MSM 300 mg, Evening Primrose Oil 30 mg, Boron Citrate 1.5 mg)
Joint health; Pain management; bone density; prostaglandin health

6 p.m., taken at same time as protein shake (23 gm of protein):
Supplement
Issue for which it’s being taken
200 mg Calcium Citrate
Post-op RnY compliance

8 p.m., Before dinner:
Supplement
Issue for which it’s being taken
Joint Support Complex (Ratio: Glucosamine HCl 1.5 gm, MSM 300 mg, Evening Primrose Oil 30 mg, Boron Citrate 1.5 mg)
Joint health; Pain management; bone density; prostaglandin health

8:30 p.m. After dinner:
Supplement
Issue for which it’s being taken
1 Berrydophilis probiotic chew 
GI “biome” health
Right before bed:
Quinipril, 80 mg
Items highlighted in red are new additions to my line up.

Wednesday, July 22, 2015

Status Report

Perhaps it's the summertime doldrums, perhaps something else entirely. Who knows. I've been struggling with negative thoughts and depression and anxiety for a while. And in a way, I feel like I'm on a sinking ship, and I'm tossing anything and everything overboard just to stay afloat.

Even though I have been pretty good about my little tweaks and rewards, as it pertains to the bevvy of appointments I find myself attending, and make sure I plan something ELSE in that day, something fun or interesting, almost like a lemony sorbet, to cleanse my day, as if the REAL purpose of my being in the city wasn't for the appointment/s, but for something FUN.

I have even thought outside the box at work, and bought a folding chair (like ones you see at sporting events), so I can sit outside for a half hour and get some sunlight and fresh air while I crochet and decompress. In the course of doing so, I have been getting some positive attention, and it breaks up my day (at least on the days I do this, which is to say, I am not doing this EVERY SINGLE DAY). This helps, but not enough.

I haven't gotten to the point where I'm sitting at my desk sobbing silently to myself, but I'm blue. And I feel trapped and the direct opposite of empowered, and this isn't where I wanted to be at this point in my life. I guess this is what a mid-life crisis feels like. I guess.

Now getting back to the sinking ship and tossing things overboard... In line with my philosophy "keep that which is useful, and discard the rest," after careful consideration, I've decided to discontinue going for my annual check ups with the bariatric surgeon. Bottom line is, I'm not getting anything useful out of it, it is a pain in the ass to get there, and while he was a good surgeon, his follow up such as it is, is lacking.

I feel I wasn't adequately prepared for how radically my bathroom habits would change.
I feel his nutritionist (who I dumped first opportunity I could) was outright lacking and judgmental.
I feel I didn't get the best bang for my buck or efforts, as in the end, he never put the mesh around my pouch, maximizing my weight loss.
I feel that he just wants me to shut up, as was evidenced by my last appointment last year, when I said I was depressed, rather than run a full panel on all my vitamin B levels (instead of just my B12), he was too quick to write a Rx for phentermine--which, is contraindicated, due to my hypertension. I feel he wrote that just to shut me up.

As a result of him writing that, I chased my tail yet again, and arranged an appointment last summer to see a psychiatrist, hoping perhaps we could test my neuro-chemistry to see WHAT EXACTLY is "off," rather than jump through a series of hoops, trying, unsuccessfully, one anti-depressant or anti-anxiety medication after another, just to be informed "We don't do that." Something so simple, a test vs trying one medication after another, just seems futile and ridiculous, and makes me realize that whatever the solution is, all I know is, it won't be found in a yellow pharmacy bottle.

So, I cancelled my appointment in June--and here it is a month later, and no call, not even an email from the NP (of whom I am chummy). 

A sign that I know things are bad for me, mood wise or depression or whatever THIS IS, I want to dump my beloved endocrinologist, who I have seen religiously every quarter of every year for the last eleven years.  I feel I am now coasting on fumes until menopause hits. No baby for me. I feel I am an uninteresting patient. And last visit, he mentioned he wanted to see me lose a bit more weight, which of course, I had a triggery type reaction to it.  I'm just tired fighting the good fight. I wish I could shake this.

I mentioned this to my husband, and he thinks I am nuts for thinking of dumping the endocrinologist, and suggested to me, instead of going there quarterly, perhaps I should discuss with the doctor the idea of seeing him every six months instead of every three. From a metabolic standpoint, everything seems "managed," no radical changes from appointment to appointment. I was considering rescheduling the August appointment to October, which then would have pushed it to 5 months between visits. I think I'll just get off my duff, get my blood work done tomorrow, and keep my August appointment--as it's also on the same day as my kidney guy. 

I'll try to do something productive today, and see if I can find an adrenal specialist, to help me with the elevated cortisol issues, or perhaps some other -ologist to help me with my pain, which is no doubt driving the cortisol to be elevated. 

Between my physical pain, and my anxieties about my job, I just wish I could find some measure of contentment, and living a life that matters. Because at the moment, I feel like I don't matter at all.