Friday, January 29, 2016

Note To Self: Glucose Target Range

Screen grab from today: 

http://www.niddk.nih.gov/health-information/health-topics/Diabetes/hypoglycemia/Pages/index.aspx

Wednesday, January 27, 2016

And In Other News

So about the pain issues I was dealing with, which cropped up at the end of the summer? Where we left off in THAT narrative, in a fit of agony and frustration, I changed physiatrists, and got an Rx for PT, which I started about a week or so before Thanksgiving 2015. 

I was going roughly for 2x a week from November until last week, and the physical therapist was incredible. He did myofascial release and other deep massage of the area near my herniation, which helped immensely, and I was on an exercise program to help strengthen up, related to the subacromial bursitis and the epicondylitis.  

My follow-up visit with the physiatrist is next Monday, and I hope to get an Rx for PT for the herniations in the low spine. The physical therapist was INCREDIBLE.

Up until the hypoglycemia drama, I was taking 1000 mg of evening primrose oil to help with prostaglandin health and inflammation, and I do believe it helped me immensely; however, before we figured out the nature of the hypoglycemia, I pitched my supplements out of fear I was contributing to the problem. I got the green light from my endocrinologist to resume taking the supplement, so that makes me happy.

Everyone needs a hobby, and I guess one of mine is figuring out how to maintain and manage THIS CONVEYANCE, my body I've been given, to get through this thing called life. It'd be easier if it came with an owner's manual like for a car. So instead of "10,000 mile maintenance check up," it'd be helpful to know that my fourth decade on Planet Earth would be so rife with shit I'd have to navigate. 

The Latest Development: Finding a Lancet That Works For Me

There are so many things I am feeling right now: anger, discouraged, fear, anxiety etc, related to the news of the reactive hypoglycemia. If that weren't enough, I am incapable of getting an "optimal STICK" with the lancet that came with the glucometer the doctor provided me:
Oh! It's a sporty little meter, and the Delica lancet is ever-so-fine; however, even at the highest setting (5), I cannot consistently get an optimally sized blood droplet for the test strip, which then requires me to do multiple sticks (wasting lancets), and also equals more OWIE.

A friend suggested the lancet he uses, a Relion. So before I trudge on over to Wallyworld to buy it, perhaps there's a way for me to comparison shop lancets. I have no idea what makes his better, and I have absolutely zero knowledge of any variation in lancet gauge from manufacturer-to-manufacturer. 

Yet another issue/event in my life that sucker-punches me, making me actively miss my dad. He would have been my Johnny-on-the-spot, letting me try out lancets and glucometers in his collection, until I landed upon the right one that works for me.

Sunday, January 24, 2016

New Development: Post-Prandial Hypoglycemia

Every time some new development crops up, I am reminded that there are assholes out there who think either I'm a hypochondriac or think I'm imagining this shit (and that sentence is THE ENTIRETY of head space I am allocating to that bullshit). 

I'm now five years out from my RnY, and some symptoms I just thought were related to my hypertension (like lightheadedness) and I was experiencing that heart flutter thing, which we've been possibly incorrectly thinking was hormonal (I'm 47).  

Up until last Monday, I had absolutely no idea anything was wrong. I went for a two hour glucose tolerance test (I'm not sure why, though my insulin has been on the low side of normal, so I thought everything's okay). My fasting glucose was 90 (normal!), and after two hours, it bottomed out at 32. However, mind you, after the test? I honestly felt fine. Had no idea anything was wrong. It was only later on when my doctor called me in a panic, did I know something was going on.    

So, yesterday I had to stick myself six times (when in reality I think I should have stuck myself 12 times) as my doc wanted me to test fasting before each meal and 2 hours after; only problem is, I didn't tell him I actually eat roughly six times a day. So I'm sure all the sticks I did yesterday are probably inaccurate.  

We have been doing a differential, trying to pinpoint what it is exactly that's the cause of  me bottoming out with a 32 at the end of a 2 hour glucose tolerance test. So many variables. It could be a combination of things: 1. I was wearing scopolamine patches on my cruise last week; 2. I drink alcohol on an empty stomach; 3. I was taking evening primrose oil, and relora supplements. Or it could be something neither of us considered: an unfortunate side effect from my gastric bypass: post-prandial hypoglycemia.

Prior to all of this, the only indication I knew something was up was the fact I feel like crap eating something like bagels, pizza, or pasta, so for me, since the bypass, I thought it was a normal progression to get away from those foods--so that's how I manage that (I pretty much avoid them). 

I guess all along I have been managing this without my knowledge by eating smaller meals, focusing on proteins, and avoiding a lot of refined high glycemic carbs.  I ate a piece of rum cake yesterday, roughly 25 gm of carbs, and nearly 2 hours later, my blood glucose was 72--so, not perfect, but also not right at the danger zone either I think.   

I cannot help but be discouraged, as I haven't lost everything I wanted (I lost 100, regained 25), and have worked hard just to maintain what I have, and tried so hard not to become a diabetic, and now THIS. 

I'm regimented.  I pack a feed bag for work, and am pretty regimented with eating six times a day, remaining compliant about the no liquids after eating restriction, as well as staying on top of all my vitamin requirements etc.

Thursday was an emergency visit with the endocrinologist, so on Friday, on a hunch I googled post-prandial hypoglycemia and I'm just really dejected and not sure how to handle the news/possibility of this as a diagnosis. When I came home from the doctor's visit, I pitched the suspected supplements in the trash--in full on revulsion, and wanting to avoid any possibility I'd accidentally take them until we figure this out. Sure, not smart money wise, but I always can buy more if it turns out to be a fluke. 

I was hoping after ditching the supplements and avoiding alcohol for a bit (mind you I do 1-2 drinks a week), perhaps we can re-do the glucose tolerance test.   Nearly all of my readings 2 hours after eating have been normal, as well as my numbers when I wake up in the a..m. (Normal for me: 88-91 have been the norm).

So now, I'm vexxed by all this finger pricking, and my blood isn't cooperating. And thinking of never eating again, given how everything seems so driven by the act of eating. I'm fine when I wake up, as my fasting glucose is between 88-91. It's what I put into my mouth moving forward which is posing to be a new challenge.

Feeling dejected, disappointed and wondering why I've been working so hard just to maintain, only to have a new set back. 

Friday, October 23, 2015

Pain Chronicles: A Relatively New Wrinkle

It seems like the day after my 8/19/15 appointment with my endocrinologist I've had this weirdness develop. It's a new issue related to an old issue if that makes sense. I have had a dull-to-agonizing throbbing pain and spasm in about 3-4 muscle groups from my neck/shoulder, elbow, forearm, and wrist on my right side. Chiropractic adjustments and deep tissue massages have not been able to unlock this pain mystery, though my chiropractor has been doing trigger point ultrasound therapy and that has helped minimize the pain temporarily.

While away on vacation at the end of August the pain amped up considerably, to the point where I called my chiropractor, worried that something was seriously wrong. Chiropractor arranged for an MRI to be done the evening I returned from my trip, and I scheduled an appointment with my physiatrist. 

Unfortunately, the MRI machine went offline the evening of my scheduled appointment, so my appointment was jockeyed to the next day and the only available appointment was scheduled two hours after my scheduled appointment with my pain doctor. Beggars can't be choosers, I had to accept this.

Pain doctor told me to bear with it an additional two weeks, and if it did not self-resolve by then, for me to come back in for an EMG so we could figure out, specifically, which nerve was involved, and then I'd move forward towards a discussion on how to address the situation.

I gave it two weeks, and procrastinated scheduling the EMG, as I felt the tiniest bit better. By three weeks, I thought I had turned a corner and was on the road to resolution. 

At current writing, about two weeks ago, I attempted to hang curtain hardware. Due to some peskiness with the drywall anchors I was using, it took an unusual amount of time to do a relatively simple task. Literally: Three hours. Granted, I took breaks, but even so it was approximately three hours with my arms above my head. As I was attempting to do this relatively simple task, a task I've done hundreds of times before in my life, I could feel something in me change. At first I thought it was just my mood being altered; however, I feel that the physical was affecting the mental, and I was more aware of being in a foul mood before I realized I was in crisis.

My spasms were back with a vengeance. My upper EMG was scheduled on 10/19/15, and to everyone's surprise (mine, my chiropractor, my physiatrist), my pain is not nerve related. All nerve activity was normal. So this leaves muscular or skeletal pain. Physiatrist sent me home with some samples of Flector patches (a transdermal NSAID) and said for me to call in a few days and let him know if they were helping.

To be honest, I don't know if the patches alone are helping or if it's a combination of the ultrasound therapy I do at night PLUS the patches, but I felt like there was some change, even if it were a small change.

So I called the doctor to have an Rx phoned in to the pharmacy, and if he could also call in an Rx for a muscle relaxant that would be very helpful. 

10/21/15 I had an appointment with my chiropractor (a standing appointment, not an on demand OMG I am in pain appointment), and I gave him the quick and dirty of what the physiatrist had to say about it not being nerve related. 

Trying to do a differential on my situation is interesting and challenging as I am not exhibiting any signs of auto immune related pain issues such as RA, PA, Lupus, so that leaves non-auto immune muscular-skeleton related issues (whatever THOSE might be--I'm still reading up on this).

Last night, I picked up my prescriptions, and took my first dose of Flexeril. After dinner, I did my usual ultrasound therapy and was able to drop off to sleep. I woke up this morning feeling ever-so-slightly "refreshed." I took a hot shower, put a Flector patch on, packed a Flexeril in my pill caddy for the day (Rx is written 2 daily as needed), and I am hoping for the best.

In the meantime, I am not doing any tasks that require my arms to be above my head, nor am I doing anything which requires my elbow to be bent for protracted periods of time.

I'm speculating that my situation might be  several separate issues flaring up in tandem: perhaps shoulder bursitis, tendonitis, and perhaps carpal tunnel (even though my right hand is my non-dominant hand, when I crochet, this is the hand that throws the yarn over my hook). My first impulse was to think it was possibly Double Crush Syndrome, however, from a neurological viewpoint, it doesn't look to be the case.

Note to self: First full day of both, Flector and Flexeril. Reassess situation in one week.

Wednesday, September 09, 2015

On An Upnote

So Saturday I head to my PCP, ISO muscle relaxers to help with this unrelenting shoulder-elbow agony. Somewhat reluctantly he writes the Rx for skellaxin.

Interestingly enough, there I was, full in the throes of two weeks (perhaps more, at that time) of this new, throbby-sobby pain, only to be surprised that my BP reading that morning was 114/72. Best numbers ever!

Protip: If You Work At a Diagnostic Center or Doctor's Office, Take Heed



You might be a moron if:
I schedule both, an abdominal AND a transvaginal ultrasound, and you only manage to schedule the abdominal, which results in me having to get up an hour earlier and make yet another "enjoyable" visit to your facility. Granted the first time I rushed into the facility only to realize I forgot my Rx at home, and you were totally unwilling to assist me (by way of having my husband scan it--yes he was home--and email it to you--and I could have either brought the actual hard copy Rx in later that day OR you could have called my doctor's office and get them to fax the Rx), thus creating a scenario where I have to return to your facility for the abdominal, to realize you ONLY scheduled the abdominal and not both.  So. Okay. The first one? That's on me. I forgot my Rx, but what the fuck? Due to your ineptitude, I now have to fuck up THREE mornings instead of just two. Yes, Hartsdale Imaging, I'm calling you out.

You might be a moron if:
My doctor faxes a Rx for an MRI of a cervical spine, to happen the very evening when I return from vacation out of state--only to rush home to messages, first calling to confirm the appointment, then calling an hour later to reschedule the appointment because the machine is offline.  And of course the appointment is two hours AFTER my scheduled appointment with my physiatrist, of whom I NEEDED THE IMAGES for a proper diagnosis.  So, I arrive at the imaging center the next day, on time, to be asked for my Rx, when my doctor faxed it in FOUR DAYS PRIOR.  Then you call my doc, he tells you to do the MRI and he’ll fax it the next business day (he already faxed it, yet, inexplicably you couldn’t find it). The MRI was supposed to be of cervical spine, yet the CD of the images says “shoulder.” (Images did turn out to be of the cervical spine--so that disaster averted--however, HELLO, how about properly labeling the CD?)  The best of the best? I go to my doctor's office last night, in hopes of relief and hoping to find out what's been causing me severe, acute pain for three weeks--only to find out that you never forwarded the radiology report to my doctor. Yes, Upright Imaging, Yonkers, I'm calling you out. 

You might be a moron if:
At yet another facility entirely (name withheld, as the appointment is still pending, and I bet dollars to doughnuts it will be rescheduled YET AGAIN), my fine needle biopsy was scheduled for 9/25, only to be rescheduled to 9/23 (since they only do FNA on Weds). And 24 hours later, it was rescheduled to 9/30. Oh it also doesn't help matters that your phone demeanor (such as it is), is lacking.

Three separate diagnostic centers or medical offices, three separate fuck ups, with three separate issues still of undetermined  diagnoses due to you just not giving a fuck. Who has time for this shit?

Friday, August 07, 2015

Syndrome & Medical Condition List

Itemized list of medical conditions, syndromes and complaints from head to toe, with my chronic pain issues highlighted in red:

Dry scalp (scale, at times similar to mild plaque psoriasis)
Migraines (mostly menses)
Clinical depression/anxiety 
Sleep disturbance
Herniation at C4/C5 (+1 more)
Retinal nerve druzen
Myopic, astigmatism in both eyes
Deviated septum
Approx 7 nodules in thyroid
Mild-to-moderate Carpal Tunnel Syndrome, (L) hand
Intermittent cystic acne under chin due to elevated androstanedione
Asymptomatic, idiopathic granuloma in left lung
Hypertension
Idiopathic, non-problematic palpitations (Possible panic attacks)
Hypercortisolemia
Unrelsolved, idiopathic elevated DHEA
Approx 4 cysts in kidneys
Intermittent/transient proteinuria
Borderline gout
Osteo-arthritis
Past history of fatty liver syndrome
Syndrome X
PCOS
Adenomyosis
Past history of fibroids
Squamous cell atypia + 1 recurrence prior to laser surgery
Herniation at L5/S1 (+1 more)
Spondylolisthesis I of low spine
Trochanteric bursitis, (R) hip
Compromised ACL, both knees

Note to Self

Endocrinologist appt on 8/19

Concerns/issues to discuss:
  1. Screening for DVT; ask for a d-dimer test. Check! Done! Rx for test written!
  2. Do I exhibit signs for Lipedema? (Mother has lymphedema; prior to that exhibited signs of lipedema--currently handicapped and housebound due to complications from both) Negative so far!
  3. How different is DIC vs Factor Five Leiden Mutation? (I tested + for FVLM; brother, however had DIC, and exhibits signs of lipedema). Quit worrying, you can only have one or the other!
  4. Saliva adrenal profiles (re: DHEA, cortisol)? 24 Hour urine collect is much more effective for diagnostics.
  5. Ehlers-Danlos Syndrome? Negative.
  6. Is it meritable to do a follow up ultrasound of the thyroid? Yes. Scheduled for 9/23.
  7. Should I consider pro-actively going for lymphatic drainage massage? No.
  8. Follow up trans-vag sono scheduled for 8/27.

Updated Supplement List



Approximately  8 a.m., taken with a hot cup of coffee:
Supplement
Issue for which it’s being taken
2 Gummy VitaFusion Prenatal Multivitamins

2 Gummy VitaFusion Sugar Free Fiber Chews
Colon health; Impactions
Omega-3 1400 mg, 1x  (ratio: 647 mg of EPA and 243 mg of DHA) 
Inflammation; heart health; anti-oxidant/anti-inflammatory
Colace 200 mg (1x)
Impactions
Alpha Lipoic Acid 250 mg, 1x (unless proteinuria issue resurfaces)
Kidney health/proteinuria; Insulin resistance; anti-oxidant/anti-inflammatory
Milk Thistle 300 mg, 1x
Insulin resistance; fatty liver syndrome; anti-oxidant/anti-inflammatory
CoQ10 50 mg, 1x
Heart & skin health; anti-oxidant/anti-inflammatory
Grape Seed Extract, 100 mg, 1x
Heart health; anti-oxidant/anti-inflammatory
Relora, 300 mg, 1x (Magnolia officinalis bark & phellodendron amurense bark)
Elevated cortisol; Craving control; Improved sleep
400 mg Magnesium (oxide), 1x daily (sometimes boost to 2x during menses)
Colon health; impactions; cramps; Improved sleep
400 mg Calcium Citrate
Post-op RnY compliance
B12 (sublingual spray), 2500-5000 mcg
Post-op RnY compliance
Right before leaving the house:
Aldactazide 25 mg.

 Approximately 10:30 a.m.:
Supplement
Issue for which it’s being taken
Cherry Rich brand Cherry Extract, 500 mg
(Borderline) Gout;  Osteo-arthritis; joint pain;
anti-oxidant/anti-inflammatory
Biotin, 10,000 mcg
PCOS related hair thinning
D3, 2000 IU
Post-op RnY compliance
400 mg Calcium Citrate
Post-op RnY compliance

12 Noon (taken with a 6 oz V8):
Supplement
Issue for which it’s being taken
VitaFusion Vitamin C, 240 mg
Facilitate iron absorption; anti-oxidant/anti-inflammatory
Feosol Iron 325 (1 tablet)
Post-op RnY compliance

2 p.m. (ingested at same time as my bone broth):
Supplement
Issue for which it’s being taken
Vitafusion CholestorWell (400 mg plant sterols)
Heart health; cholesterol; anti-oxidant/anti-inflammatory
Vitamin B1, 100 mg, 1x (which I make sure not to take at same time as coffee)
Adenomyosis pain; Improved sense of well-being; Improved sleep
Vitamin B2, 120 mg, 1x
Migraine abatement; Improved sense of well-being
Vitamin B6, 100 mg, 1x
Kidney health/minimizing oxylative & oxidative damage; Improved sense of well-being
Joint Support Complex (Ratio: Glucosamine HCl 1.5 gm, MSM 300 mg, Evening Primrose Oil 30 mg, Boron Citrate 1.5 mg)
Joint health; Pain management; bone density; prostaglandin health

6 p.m., taken at same time as protein shake (23 gm of protein):
Supplement
Issue for which it’s being taken
200 mg Calcium Citrate
Post-op RnY compliance

8 p.m., Before dinner:
Supplement
Issue for which it’s being taken
Joint Support Complex (Ratio: Glucosamine HCl 1.5 gm, MSM 300 mg, Evening Primrose Oil 30 mg, Boron Citrate 1.5 mg)
Joint health; Pain management; bone density; prostaglandin health

8:30 p.m. After dinner:
Supplement
Issue for which it’s being taken
1 Berrydophilis probiotic chew 
GI “biome” health
Right before bed:
Quinipril, 80 mg
Items highlighted in red are new additions to my line up.